Sora Neko ([info]soraneko) wrote,
@ 2008-08-19 12:11:00
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Little Miss Rose
The other day, I was invited to join a group to raise awareness for a little girl called Rose. She was born in September, 2006 and is epileptic, hypotonic, blind and "globally delayed in every area". Despite all of this, her mother is finding it really hard to get any sort of support, because, according to a lot of support groups she isn't disabled until she's three years old! The mother is unable to transport her child because she doesn't have suitable transport for her (she's too big for a lot of baby seats, but unable to hold herself up!) and for a long time she and her other two daughters were housebound, as she couldn't transport anyone anywhere

For more information, you can visit http://www.littlemissrose.co.uk/news.php to see the blog and I'm guessing there will be more information up there soon (it seems like a relatively new site)

I'm just posting this up because... well, I think that maybe if this is passed around enough then it might reach someone who can do something about it...

Rose has a lot of medical proof that her mother needs a help to be able to lead her life with such a heavily disabled child and yet she is struggling along by herself just because her child hasn't living long enough? Ridiculous...



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